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List of Links for PPS and General Disability Resources
These links are not a comprehensive listing, but a sampling of some good sites. They were selected to represent a broad range of locations and emphases. Many of them will link to other sites not listed here.
For more comprehensive online directories of doctors, clinics, and support groups
click here.

Post-Polio Resources (General)         

U.S. Post-Polio
Syndrome Groups

Disability Resources (General)         

Non-U.S. Post-Polio
Syndrome Groups


Links to Polio Eradication Resources

Global Polio Eradication Initiative http://www.polioeradication.org/ The goal of the Global Polio Eradication Initiative of the World Health Organization is to ensure that no child will ever again know the crippling effects of polio. The Global Polio Eradication Initiative is the largest public health initiative the world has ever known.

Rotary International http://www.rotary.org/foundation/polioplus/index.html In the early 1980s, Rotary began planning for the most ambitious program in its history � to immunize all of the world's children against polio.

The Centers for Disease Control http://www.cdc.gov/doc.do/id/0900f3ec802286ba has information on the polio vaccines, history of polio, and how polio does its damage.



Links to General Post-Polio Resources

Listed by subcategory (please note that these categories may overlap):
Faith-related, Medical, Non-English Language, General/Comprehensive sites
Faith-related

PPS'rs and Christian Faith Tommy Lynn and several other Christian PPSer's have come together and created a safe haven for talking about common problems, and hopefully have answers or solutions for each other.

Post-Polio Articles written by polio survivor Pastor Tim Zingale: 1. Hero 2. Learning to Talk with Modern Technologies. Also other polio- and spirituality-related articles.

Polio Experience Network Post-polio information, resources, and inspirational articles written by polio survivors. Don't miss their excellent articles on spiritual concerns of polio survivors.

Medical

Getting Social Security Benefits Dr. Richard Bruno worked with Senator Bradley and others to help bring about SSDI coverage for PPS. His article here guides us through the process of getting the benefits the law now provides.

Post-polio Library Look here for articles by two of the premier PPS medical researchers: Dr. Bruno and Dr. Frick. This is a great resource for your doctor or other medical care provider.

International Rehabilitation Center for Polio (IRCP) at Spaulding Located in Boston, Massachusetts, the IRCP is a non-profit center started at the beginning of 2001 as an extension of the existing polio clinic directed by Dr. Julie Silver at the Spaulding Rehabilitation Hospital Network in Massachusetts. Sign up for free newsletter and don't miss the polio history pictures.

Dr. Henry Holland Dr. Holland has Post-Polio Syndrome and belongs to the Central Virginia Post-Polio Support Group. His articles are not to be missed.

Grace Young's Energy Conservation Page An occupational therapist and polio survivor who has developed programs and taught hundreds of other polio survivors presents monthly articles on energy conservation and ways to help lessen the symptoms of pain and fatigue.

Post-Polio Syndrome - Recently Published Medical Articles Ernie Wollering maintains a list of medical articles on PPS dating back to 1990. Includes links to article abstracts.

PICO The Polio Information Center Online (PICO) provides information about poliovirus, the causative agent of paralytic poliomyelitis.

NINDS The National Institute of Neurological Disortders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH).

General/Comprehensive sites

Post-Polio Health International PPHI, formerly known as GINI/International Polio Network, is one of the oldest and best sources for post-polio syndrome information. PPHI publishes several polio- and disability-related newsletters and booklets and holds outstanding conferences in its home city of St. Louis, MO.

Polio Experience Network Post-polio information, resources, and inspirational articles written by polio survivors.

Post-Polio Syndrome Central This is a good jumping-off pla.e with hundreds of links related to polio/PPS.

Post-Polio Homepage Major source for post-polio information with scores of links to PPS groups, chat sites, user groups, newsletters, doctors' reports, and medication information.

PostPolio.Org Tom's site is one of the oldest online post-polio resources. Many useful articles and links and a large online email discussion group.

Non-English Language

Poliomielitis y Syndrome Postpoliomielitis Escribido en espanol. (Written in Spanish).


Links to U.S. Post-Polio Syndrome Groups

Listed by Region: West -- Midwest -- South -- Southeast -- Northeast

West

San Diego Polio Survivors Group Established in May 1998 in San Diego, California ,with the mission to establish a positive, friendly group to discuss and learn about Post Polio Syndrome, gather and share accurate and specialized information; increase public awareness & knowledge of the Post Polio Syndrome; do medical outreach regarding Post Polio Syndrome; provide non-judgmental emotional support; provide speakers and/or discussion topics; help form small Post Polio Syndrome groups; and plan events, parties, and group acitivities.

The Mt. Diablo Post Polio Network is a support group dedicated to serving the needs of post polio patients in the Bay Area. Meetings are held at 10:30am the third Saturday of every month at the San Ramon Regional Medical Center (located at 16001 Norris Canyon Road in San Ramon,California. Guests are welcome and no reservations are required.

The Post Polio Support Group of Utah meets at 10am the fourth Saturday of every month at the Salt Lake County complex, 2001 S. State Street. The group is sponsored by the Easter Seals Society of Utah. For more information, call Easter Seals at (801) 486-3778. --Michael Call

Post Polio Syndrome (PPS) Support Group of Northern Nevada The board for this PPS support group in northern Nevada consists of a Neurologist, Psychologist, Physical Therapist, and an RN, who is also a PPSer. This e-mail address is being protected from spambots. You need JavaScript enabled to view it

SNAPS (Southern Nevada Association of Polio Survivors) This group meets in the Lake Mead area and can also be contacted via e-mail at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Texas Polio Survivors' Association, Inc. Texas Polio Survivors' Association (TPSA) was established in 1984 to provide support to those experiencing the late effects of polio. The organization relies heavily on its volunteers, and offers educational programs, provides information and referral to polio survivors, facilitates peer support and promotes community awareness.

Post-Polio Support Group Located in El Paso, Texas, and affiliated with the Texas Polio Survivors' Association. For polio survivors with post-polio syndrome. To educate and support each other. Meetings and social outings. Bilingual. Meeting since 1990. Meets: Rio Vista Rehab Hosp., 1740 Curie Dr., Edu. Room 2nd Sun., 2:30 p.m. (915) 532-3236 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Polio Outreach of Spokane (POS) This group in Spokane, Washington, provides Post-polio information, resources, and inspirational articles written by polio survivors. Don't miss their excellent articles on spiritual concerns of polio survivors.

Midwest

The Central Indiana Post Polio Support Group was established in 1993 to provide support and information to polio survivors. Although established in Anderson, Indiana, the group reaches over 250 survivors, family members, friends, and health care professionals. It receives support from other individuals and organizations on a national and international basis. Contact Ellen at (765) 649-3648 or email her at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

West Central Iowa Post Polio Support Group Polio support in Denison, Iowa. email address is This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Provena Covenant Post Polio Support Group in East Central Illinois, meets the 1st Thursday of every other month at the Heritage meeting room at Provena Covenant Medical Center. Call for time 398-8524.

PPASS Minnesota is based in Minneapolis/St. Paul and also has chapters in Duluth, Brainerd, St. Cloud, Owatonna, and Edina (West Metro). Their newsletters are available online as .pdf files.

South

Bluegrass Polio Connection is an Eastern Kentucky support group formed in 1995 by the March of Dimes, Cardinal Hill Rehabilitation Hospital, and University of Kentucky Department of Neurology. Meetings are usually held the first Tuesday of every month from 7-8 p.m. at Cardinal Hill Rehabilitation Hospital. The goal of the group is to learn together, empowering patients of polio and post-polio to partner with healthcare professionals in the structure of their individualized treatment options. For more information, please call the March of Dimes Kentucky East Chapter at (606) 278-4630.

Jackson Polio Survivors Support Group Meets the 4th Saturday of each month (January to October) in Jackson, Mississippi. The website includes a map, latest news, and description of Post-Polio Syndrome.

Louisiana PPS Support Group(s):
Warren Chauvin - Coordinator, Thibodaux, Louisiana (504-446-5678)
Carl Cortez, Houma, Louisiana (504-868-8129) Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Mike Leblanc - Coordinator, Baton Rouge, LA (225-644-3283) Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Southeast

Central Virginia Post-Polio Support Group
This web site in Virginia is full of excellent information, including their newsletter articles. Don't miss the articles by Dr. Henry Holland.

The Roanoke Polio Connection
Jim Kimball-Chairman
Ph: 540-344-2051 E-Mail This e-mail address is being protected from spambots. You need JavaScript enabled to view it
930 Murray Ave.; Roanoke VA 24013-1842

Triad Post-Polio Group in Greensboro, North Carolina has recently put up a wonderful-looking web site. They meet the last Sunday of every month, except for November and December. Contact TPPG at 600 Savannah St., Greensboro, NC 27406; Phone: 336-373-1122; email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

The Metrolina Post-Polio Support Group in Mecklenburg County, North Carolina, meets to provide support and information for survivors of polio and their families. For details, call a member of the group at 523-6083 any day from 9 a.m. to 9 p.m. or call the NC Easter Seals Society at 800/662-7119 weekdays from 9-5.

Atlanta Post-Polio Association A very helpful resource in Atlanta, Georgia, this includes some excellent articles.
The Atlanta Post-Polio Association meets the first Saturday of each month, 10 a.m. to noon, at:
The Shepherd Center
2020 Peachtree Road NW
Atlanta, GA 30309

Phone (404) 350-7631
E-mail to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

North Central Florida Post-Polio Support Group The North Central Florida Post-Polio Support Group is a
not-for-profit community service group reaching out to well over 600 survivors of polio within a 75-mile radius of Ocala, Florida, and to hundreds of additional survivors throughout North America and the world since our founding in 1990. This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Florida East Coast Post-Polio Support Group Their newsletter, edited by Barbara Goldstein, is available online here.

Indian River County Call 561-778-2100 in Florida to reach this Post Polio Support Group at HEALTHSOUTH Treasure Coast

Post-Polio Support of Brevard County, FL Meets the 2nd Sunday in January, March, May, July, September and November from 2:00 - 4:00 PM at the Brevard Baptist Association on US1 in South Rockledge, Florida. Social
activities are scheduled for Feb, April, June, Aug., Oct., and Dec.

Mobile Area Post-Polio Support Group Located in Mobile, Alabama, the MAPPSG provides support for its members and adds "polio is not a conquered disease until all forms of the disease are wiped off the face of the earth - and that includes Post-Polio [Syndromee]."

Northeast

The Neuromuscular Support Group has been meeting regularly at Eastern Maine Medical Center, Bangor, Maine on a monthly basis since June 19, 1985. The present members range in age from 35 years to 74 years. The group includes people with many different conditions, including ALS, MD, Myasthenia Gravis, cerebral palsy, multiple sclerosis, post-polio syndrome, bulbar palsy, and diabetes.

The Post-Polio Network of New Jersey (PNNJ) includes chapters in Atlantic County, Bergen Co., Monmouth Co., Morris Co., Ocean Co., and Raritan Co., and Southwest New Jersey.

Contact them at:
P.O. Box 537 Martinsville, NJ 08836
Ph. 201-845-6860 email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Post Polio Syndrome Support Group of Delaware For Further Information Call or Write:
Easter Seal Independent Living Center
24 Reads Way Bldg. 22
New Castle, Delaware, 19720
phone: 302-324-4488 fax: 302-324-4481 TTY: 302-324-4482

The Greater Boston Post-Polio Association (GBPPA) provides selected, very helpful medical articles as well as personal articles written by its members. Contact them by voicemail at (781)596-8245 or by writing to
GBPPA
1 Grove Street
Post Office Box 812726
Wellesley, MA 02482-0024

Polio Connection of America This is a very active group in New York with many online newsletter articles, too. Sign up for a free sample newsletter: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Polio Survivors of Central New York is facilitated by Mrs. Gloria Rossi. She can be reached for Q&A's at 1-315-472-2473. Gloria has been instrumental in forming the support group and providing many of us with personal knowledge and avenues of attack against this thing called PPS.

Polio Survivors&quo; Group of Western NY The Polio Survivors&quo; Group of Western New York is dedicated to providing fellowship, information, and guidance to anyone in WNY who has had polio. Meetings are held at St.Stephen&quo;s-Bethlehem United Church of Christ on Wehrle near Union. We meet at 7:15 p.m. the third Wednesday of each month except July and August. New members or visitors are welcome.
For more information by e-mail, click here: This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call Don O‘Connor at (716)773-7254.



Links to Non-U.S. Post-Polio Syndrome Groups

Saskatchewan Polio & Post-Polio and the Ontario March of Dimes are excellent Canadian sites with in-depth polio and PPS articles and links.

Post Polio Support Group of Dublin, Ireland began with three Polio survivors meeting in Dublin in January 1993. By May 1993 detailed work had commenced, a larger committee had been formed, a constitution drawn up and contacts were made with the media, and as a result, letters came in from people from all over Ireland who were in need of help. Explanatory booklets about PPS were obtained and distributed, and in May 1994 a one-day conference was arranged in Dublin at which Dr Marinos Dalakas from Maryland USA and others took part. With the help of Dr Orla Hardiman consultant neurologist at Beaumont Hospital, it was arranged that polio survivors who need specialist medical help could be assessed at the Neuromuscular Clinic there.

Leicestershire Post Polio Network and the Lincolnshire Post-Polio Network England is growing in awareness about PPS in no small part due to the efforts of these groups and web sites. Lincolnshire has become the home of a vast library of PPS information, including professional medical documents.

The British Polio Fellowship in Middlesex, England, is a registered charity with over 8000 members. It was one of the first organizations of disabled people, and it has acted as a voice for people who have had polio for over half a century. They post numerous abstracts from articles on current research in polio/PPS

Post-Polio Network Located in New South Wales, this is one of many great support groups in Australia. Find a lot of good information here, as well as links and addresses for other Australian support groups.

Post-Polio Support Society NZ New Zealand's Post-Polio Support Society was initiated in 1987. It has 23 district groups which operate autonomously, but national character is provided through the board of management. The Society aims to provide support for those who have had polio.

This e-mail address is being protected from spambots. You need JavaScript enabled to view it manages the only Post-Polio Clinic in Israel. There are 10,000 Polio survivors in Israel; 2,000 have been seen in the clinic.

http://www.postpoliomexico.org/elspp.html Post-Polio México es una organización altruista y sin fines de lucro, constituida por sobrevivientes de la polio, pacientes con síndrome postpolio, familiares, amigos y médicos quienes hemos asumido la responsabilidad de dar a conocer el SPP, tanto entre los sobrevivientes de la polio, sus familiares y amigos, como entre la comunidad médica, que aún lo ignora, para que los nuevos pacientes que presenten los síntomas de este síndrome sean oportuna y adecuadamente diagnosticados y manejados médicamente.

Post-Polio Association of Portugal (in Portugese) Associação Pós-Pólio de Portugal O Síndroma Pós-Pólio (SPP) desenvolve-se entre 30 a 40 anos depois da recuperação funcional da poliomielite, atingindo entre os 20% e os 40% daqueles que tiveram esta doença. Os sintomas mais comuns do SPP são: fadiga, fraqueza e dores. A fadiga é o sintoma mais frequente e debilitante, ocorrendo em cerca de 90% dos pacientes. Manifesta-se, geralmente, por intermédio de exaustão e fadiga muscular -os pacientes verificam o declínio súbito da resistência no desempenho de actividades da vida diária. O nosso e-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
O nosso endereço:
Apartado 2089
7021 Évora Codex - PORTUGAL



Links to Other Disability Resources


AAPD - American Association Of People With Disabilities. On July 25, 1995, some 550 individuals from all 50 states, representing America's 54 million people with disabilities gathered in Washington to help launch a new nonprofit organization, the American Association of People with Disabilities - AAPD. The new organization
promises to bring about "the next step in the evolution of the disability rights movement" - economic clout and power through numbers-unity, leadership and impact. Also see their

Abledata ABLEDATA is an electronic database of information on assistive technology and rehabilitation equipment available in the United States. With more than 23,000 product listings, ABLEDATA covers everything from white canes and adaptive clothing to low vision reading systems and voice output programs. This site is from The National Institute on Disability and Rehabilitation Research - U.S. Department of Education.

Americans with Disabilities Act Home Page (U.S. Department of Justice): The ADA prohibits discrimination on the basis of disability in employment, programs and services provided by state and local governments, goods and services provided by private companies, and in commercial facilities. Much more information is at this web site or you can call the Toll-Free ADA Information Line to obtain answers to general and technical questions about the ADA and to order technical assistance materials: 1-800-514-0301 (voice) 1-800-514-0383 (TDD)

The Disabled People's Association Singapore Since it's founding, DPA members have been in the forefront carrying out the first and third objectives of 2nd Asia-Pacific Regional assembly, namely: "To influence decision makers to implement policies and programmes aiming at promoting social integration of persons with disability," and "To share experiences concerning disability in order to co-operate in search of better solutions." This they do through their "voice," the Integrator. E-mail This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Health Finder U.S. Government search engine, descriptions, and links for health-related issues (including PPS).

Health and Humor and Healing For a change of pace approach to good health, nothing beats a good laugh!

Healthlinks HealthlinkUSA - provides links to 1,000's of health sites and 100's of health topics featuring treatment, diagnosis, prevention, risk factors, support groups, email lists, personal stories, etc. Updated regularly.

Independence First This is the Milwaukee link to a national organization that helps with many disability-based needs. They are one of the sponsors of the PPRG of SE Wisconsin, and we are grateful for their support.

The Jim Mullen Foundation provides free computers for people who have a disability. Jim Mullen was a Chicago police officer until he became disabled by a gunshot. He has put together a program that specializes in providing computers for anybody especially for those individuals who think that they are unable to use one. Apply online or contact: The Jim Mullen Foundation; 350 West Ontario Suite 4E; Chicago, IL 60610-4040; (312) 440-4251.

Midstate Independent Living Center MILC... is a private non-profit agency serving persons with disabilities. As an advocate of consumer choice and consumer control, MILC is committed to upholding the rights of people with disabilities and to assist their efforts to achieve independence. MILC is operated by a staff and board composed primarily of people with disabilities. We help make independent living a reality for persons with disabilies. Serving Adams, Florence, Forest, Langlade, Lincoln, Marathon, Oneida, Portage, Taylor, Vilas & Wood Counties in Wisconsin

New Horizons Un-Limited Inc New Horizons is a newly formed non-profit organization committed to promoting communication and providing information to empower people who have life-long disabilities and their caregivers. Their stated goals are (1) enabling independence and self-help by providing information on resources and services available in the community; (2) fostering the interchange of information between people whose life long disabilities have tended to isolate them from the surrounding community; and (3) forming a network of individuals who are committed to the exchange of ideas and experiences, problem solving, and finding solutions for larger issues which affect people with disabilities.

Sexual Health Network Home Page This site is designed for ADULTS with disabilities of various kinds. Please do not link here if frank language will offend you (there are no pictures).

Sex & Human Life This document is written by Robert Lovering, a psychological counselor with over four decades of professional experience, who specializes in problems facing persons with disabilities.

Social Security Link to the U. S. Social Security Administration.